Emilee Speaks: POHS update

Thursday, August 20, 2015

POHS update


I haven't done an update on my POHS in quite some time, so I thought I'd do that today.  It has escaped my mind because there hasn't been much to talk about really.  Which thinking about that, means I actually should be shouting from the rooftops and being grateful!

If you're unfamiliar with POHS or my issues with this, you can find all my POHS posts here.  In short: POHS stands for Presumed Ocular Histoplasmosis Syndrome.  It's a syndrome affecting the eye, which attacks your central vision.

Now on to the good news!  The reason I've been quiet about it lately is because my bleeds haven't been active!  I haven't received treatment since February!  This is the longest I've gone without injections since I was diagnosed.  I'm over the moon about it!  It's such an amazing feeling for the doctor to come in and say "everything looks good, we'll see you in 6 weeks"!

Now when I say everything is "good" I'm talking about my good eye.  It has been affected by POHS but it's the only good eye I have left.  My right eye has 100% central vision loss.  My left eye is my good eye, so we're doing everything to keep vision strong in it.  We don't even treat my right eye anymore because the scarring is too significant and irreversible.  My left eye has been active for quite some time and I was receiving regular injections in it for over a year.  So to go 6 months without issues has been such a relief!

I know that it can flare up at any time and I'm mentally prepared for that.  But for right now, I'm basking in thankfulness!

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