I haven't done an update on my POHS in quite some time, so I thought I'd do that today.  It has escaped my mind because there hasn't been much to talk about really.  Which thinking about that, means I actually should be shouting from the rooftops and being grateful! If you're unfamiliar with P…

Okay so here's the deal...  I've spent the last week taking a break from blogging to regroup && reorganize.  Not only did this apply to my house but it applied to my life.  I've needed some "me" time to reflect && make some important decisions for myself.  I'm feeling much…

With my POHS  keeping my stress low is very important.  Studies have shown that stress can elevate complications with POHS.  I can't say I live an overly stressful life as it is.  I only work part-time outside the home [28hrs], my son is 16 so I don't have little ones, and aside from the POHS itself I don&#…

Holy. Smokes. This last Avastin shot reallyyy kicked my butt.  Ugh.  I'm so sorry that I've been away for so long.  I wasn't expecting this most recent shot to take me down like it has.  It's been awful.  Much different experience than my shot last year. They started a different technique with the …

Today I will be receiving my Avastin shot for my POHS.  [ I've obviously pre-written this post. ]  Just wanted to remind you all that today is the day.  I may be absent for a little while, depending on how long it takes me to recover.  I tend to experience severe drowsiness && nausea for several days a…

Dealing with a disease/syndrome/illness can be a veryyy trying time.  I've been living with POHS for several years, and only had my diagnosis for a little over a year.  It is incredibly difficult at times to stay positive during "flare ups" .  POHS is an expensive syndrom and has no cure.  The mai…

Can you believe it's getting close to Christmas already?  This year has really flown by.  Course it seems as I get older, the years go by quicker and quicker.  I can't lie though, I'm very ready for Christmas.  I plan on decorating this week.  There's just something jolly about a house full of whims…

Woohoo it's friday!  [Which doesn't mean a whole lot to me since I'm currently working 7 days a week...]  My day didn't start out too well, how was yours?  This morning I woke up at 7:59 [work starts at 8am] to my son saying, "mom what time do you work today?"  Talk about a rushed morning!  B…